Moving on to surgery

We knew we would eventually be at this point and now the time has finally come. Today we had Andrew's monthly follow up exam with Dr. Mazow. We have had no progress in two months so we are certain we have hit our plateau at 20/60 vision. We are thrilled though to have regained this much vision and praise the Lord for his healing and mercy on Andrew. We have scheduled Andrew's surgery for about a month from now; April 1st to be exact. It will be an outpatient procedure downtown at the Medical complex. Dr. Mazow only wants to do surgery on the left eye and not the right eye since it is in good shape. He will reposition the left eye to have a straighter alignment. We will likely have to continue some patching after surgery, but only a few hours a day. For now though we will have to continue to patch all waking hours until his surgery in one month. We are very pleased and thankful for Dr. Mazow and his staff. They have all been very kind and helpful.

I did notice in Andrew's eye exam today how much more confident he is in naming his letters and naming them quickly. I think he is becoming much more comfortable with Dr. Mazow and his staff. To their credit they work hard to make the kids feel at ease and Dr. Mazow is never in a hurry with us. He always takes time to visit with Andrew and us. This has been an added bonus in his eye exams to see how much he is progressing not only visually, but socially, cognitively and linguistically in a different environment.

For Andrew the patching has been challenging for him to continue to catch up academically in English and socially. With poor vision he often misses some of the nuances and social cues that he is so good at picking up on when he is not patched. I know that it has been a huge blessing for him to be home schooled as he is not having to deal with negativity daily from peers that is often an additional hardship for kids with vision issues who are in a government or private school environment. We have had a few encounters with curious and sometimes insensitive strangers of all ages when we are out and about going to museums, stores, parks etc. This has provided an opportunity to address how to handle other peoples rudeness and sometimes just innocent curiosity with the security and safety of those who love him nearby to coach him and help him talk through how to respond to those situations in the future. He is not being left daily to fend for himself all alone to retreat inwardly to cope or act out agressively to defend himself. I am also thankful for the precious kids that Andrew goes to church with that are so tender and thoughtful to Andrew. Looking out for him and making sure he is not left out or in harms way as he may not always see something coming at him. To God be the glory for all that He is doing in Andrew's life. Andrew is truly an amazingly resilient little boy whom the Lord is redeeming the time lost. He becomes more precious to me everyday and I could not imagine my life without him in it. The Lord has and continues to teach me much through Andrew's eyes.

Kathlena also had her first evaluation with Dr. Mazow today. She seemed as if eye exams were routine for her when she bounded into the chair with her ponytail wagging and her big smile. Her happiness is contagious...you can't help, but smile from the inside out when you are around her. Since, she has been to all of Andrew's eye appointments observing what to do she was quite ready and so glad to have her turn. It would seem that her nystagmus has lessened in frequency and Dr. Mazow commented that it seemed very "controlled". He wants us back in 3 months to keep check on it as we were unable still to get a vision test on her. She is not quite able to comprehend reliably what is being asked of her, but this is not unusual for her age. She will be 4yrs. old by her next visit and we have a chart to work with her on for next time. Dr. Mazow was in no hurry to talk surgery for Kathlena that as long as she is showing progress and the nystagmus lessening he wants to continue to observe her for now.

Status Quo

Andrew had his monthly eye appointment with Dr. Mazow. While the very optimistic(we love this about him) Dr. Mazow believes Andrew is still improving he is still testing at the same acuity as a month ago, 20/60. We are continuing with the patching for another month to see if he will improve or if we have reached a plateau. Likely we will begin talking about surgery options at our next visit. We ask for your continued prayers as we trust the Lord to lead us through this decision making process to help give Andrew the best possible vision. He is such a trooper! While he does not like to wear his patch...he does and he never complains. It is as if he knows how important this is for him to wear...he has an amazing attitude about it that we believe could only come from the Lord. So we proceed for the 3rd consecutive month of patching all waking hours everyday.

Kathlena did not have her appointment as we had scheduled. A series of scheduling issues on our end and Dr. Mazow's had us postpone Kathlena's appointment until next month...perhaps a blessing in disguise. Although, Kathlena was trying to help Andrew see some of the pictures by calling them out while he was being tested...we quickly assured her that her time would soon come. Big brother appreciated the gesture though :)

Now our usual after our appointment routine is to head over to the Museum district since we are already downtown and have a picnic lunch before heading to the Zoo. We are making good use of our Zoo Pass. We were disappointed though since it was cloudy and threatening to rain the 11 day old baby giraffe was not visible for us to see nor the baby Safica Lemur. Fortunately, though we were able to watch via YouTube, but it would have been great to see them in person. Well maybe we will get to see them next time. We also spent quite a bit of time seeing the Primates. We started a new BFIAR book called Caps For Sale by Esphyr Slobodkina. It is an adorable little book about a peddler who sells caps and gets them snatched up by some curious little monkeys. We had fun monkeying around and watching the Mandrills, Lemurs, and Orangutans.

Here are a few pictures Emily captured for us at the Zoo.
Mom reading our new BFIAR book, Caps for Sale



Resting under a big tree like the peddler in

Caps For Sale!

Andrew loved watching this funny Mandrill, he had quite the
personality.


With the threat of rain looming over us we decided to check out a tip a friend gave me that The Museum of Natural Science has free admission to it's permanent main exhibits on Tuesdays from 2pm-8pm. It was fun since Andrew and Kathlena have not been before and it has been ages since Emily and J.Michael have been so it was like a first for us all. We were able to see how enormous dinosaurs would be standing next to us. We spent most of our time though touring the Energy exhibit. It was really informative and we even rode in a Geovator, which is a simulator that lets you experience what it would be like to go hundreds of feet below the surface on a drilling expedition to find oil. We also toured the Gem and Mineral exhibit...this was a favorite for Emily and I. It was so neat to see all of these huge pieces of rock that encased some of the world's most beautiful gems. We also went into the vault to see the collection of precious jewels. There were two pieces from St. Petersburg, Russia that were once worn by royalty.

It was a good day...almost all fell asleep on the long ride home in traffic, but it was so worth it! We will have more on our visit next month until then we will keep checking on those Zoo updates and plan our Butterfly Exhibit trip. Spring is such a wonderful time of year!