Ophthalmology Update...progress!!!

We went for our follow-up appointment today with Dr. Mazow, Andrew's pediatric ophthalmologist (maybe I will finally learn how to spell this word!) who specializes in strabismus and amblyopia. We were so thrilled to find out that Andrew had improved 3 lines, from 20/100 to 20/60. He is almost back to where we thought he was at last summer, although now we have to wonder if he really was 20/50 since two other Dr.s showed him at best 20/70. At any rate it was a great relief to have him going in the right direction. So, we continue to patch all waking hours for another month and pray we can get him to 20/30. This is Dr. Mazow's optimum for him before surgery. The truth is this would truly be a miracle given the likely length of time he has gone untreated as we believe him to have had this since birth. We trust our sovereign Lord and pray His will be done as He created Andrew's eyes and knew all of this would come to pass.
Dr. Mazow will do the surgery even if Andrew does not improve from where he is right now, but we are unsure how long he will wait. I believe as long as Andrew is showing improvement that we will continue to patch month to month. Once progress plateaus I am sure we will begin to talk about surgery options.

Patching all waking hours is difficult. We are seeing some changes in Andrew. As you can imagine he tires more easily, concentration and focusing on tasks has become much more challenging for him. In the evening I can more visibly see his nystagmus in the left eye as he is so tired. It is a sacrifice as his learning has slowed also although he continues to amaze us with his impeccable auditory learning and memory. The Lord has given him such a sweet spirit of perseverance and joyful attitude with all of this. Of course that smile says it all. We know the sacrifice is short term for long term benefits. We trust the Lord to guide us to make the best decisions for all of Andrew not just his eyes.

Dr. Mazow was so excited and so good with Andrew. It was a good day as we all went to this appointment together so, we all got to share the joy of this news first hand. In talking with the Orthoptist she noticed Kathlena's head tilt and we talked to her about Kathlena's nystagmus. We will be taking Kathlena in for evaluation at Andrew's next visit too. We feel so blessed by Dr. Mazow and his staff. All of them have been so good to us and the kids. We praise the Lord for leading us to this Dr. at just the right time.

I continue to research on both nystagmus and strabismus and surgical options. A book that has been very helpful to me is Navigating Nystagmus with Your Doctor. The man who wrote it has lived with nystagmus his whole life and fought to get the treatment he needed. He has done tons of research and even has yahoo groups of people who share this diagnosis. There have been some new surgical procedures in the last decade that may be what Andrew and/or Kathlena will need. I am continually in awe of how the Lord is providing for them in ways I could never have imagined.

Both Andrew and Kathlena continue to grow in stature and knowledge. They are truly incredible kids. I am so privileged to be their mom.

After our appointment we headed over to the Houston Zoo. That Zoo pass is going to get lots of use as we are going monthly for Dr. appointments. Here are some pictures from our day.

My beautiful girls!

Zebras were Andrew's favorite.

This little lizard was too funny. It was playing with Kathlena.

It would jump towards the glass at her and she would giggle.

I wished I had videoed it. It was too cute! The reptiles are not

usually so lively so we were surprised.

Andrew and Kathlena's first time on a carousel. They are

hooked now and can't wait to go back next month to ride

again.

Daddy is coming to pick us up and none too soon

as the littles are ready for a nap. It has been a long,

exciting day. Mommy is ready for a nap too!