Celebrating 3 wonderful years with Andrew and Kathlena home!
Be sure to see "An Introspection" from previous years!
The Dvina River
Showing posts with label andrew. Show all posts
Showing posts with label andrew. Show all posts
Friday, May 20, 2011
Tuesday, May 19, 2009
Cleared for Surgery
We are ready for surgery and most of all Andrew is ready and excited to have this surgery. We completed our pre-op evaluations with the pediatrician and with the ophthalmologist. Andrew is still at a strong 20/50 and will have surgery on only his left eye. The surgery is outpatient so we will arrive early on the morning of June 3rd at Gramercy Outpatient Clinic in Downtown Houston. This clinic is actually right across the street from where we go to see Dr. Mazow so it is familiar territory for us. Little Andrew will have to have nothing to eat after midnight the night before until after his surgery, so we are hoping for an early surgery time slot. At this point we will not know the exact time of the surgery until the day before.
We start giving Andrew antibiotic eye drops at 3 days prior to surgery (pray for him on this it is not fun for him!) After surgery we will have to give him the same drops plus an anti-inflammatory eye drop several times a day. He will have no bandages after surgery, but we have been told that it is possible to have bruising although not likely. He will however likely have red, bloodshot eyes for a day or two and his eye will feel like he has sand in it. The most difficult of the post op time is that for 2 weeks he cannot swim, even get bath/shower water in his eye nor any dirt. So, basically he can't be a BOY for two weeks! Well, we will catch up on a few movies and learn some new board games to play. Any suggestions for fun games is greatly appreciated.
It is strange I am finding myself grieving this change a little. Andrew's eye has just been part of who Andrew is so the thought of how different he will look has taken me by surprise. I know it will be better in every way, but that cute little eye turn is part of my first memory of seeing my sweet little boy. I will miss it. Just as one day the little boy diminishes and the young man emerges, life is about changes...we never stay the same.
Thank you to the many who have encouraged us throughout this year as we have journeyed through this process that has led us to surgery at this appointed time with this specific doctor. We are so thankful for the many prayers and notes of encouragement over the past year.
We start giving Andrew antibiotic eye drops at 3 days prior to surgery (pray for him on this it is not fun for him!) After surgery we will have to give him the same drops plus an anti-inflammatory eye drop several times a day. He will have no bandages after surgery, but we have been told that it is possible to have bruising although not likely. He will however likely have red, bloodshot eyes for a day or two and his eye will feel like he has sand in it. The most difficult of the post op time is that for 2 weeks he cannot swim, even get bath/shower water in his eye nor any dirt. So, basically he can't be a BOY for two weeks! Well, we will catch up on a few movies and learn some new board games to play. Any suggestions for fun games is greatly appreciated.
It is strange I am finding myself grieving this change a little. Andrew's eye has just been part of who Andrew is so the thought of how different he will look has taken me by surprise. I know it will be better in every way, but that cute little eye turn is part of my first memory of seeing my sweet little boy. I will miss it. Just as one day the little boy diminishes and the young man emerges, life is about changes...we never stay the same.
Thank you to the many who have encouraged us throughout this year as we have journeyed through this process that has led us to surgery at this appointed time with this specific doctor. We are so thankful for the many prayers and notes of encouragement over the past year.
Wednesday, April 15, 2009
Twists and Turns
All I can say is that we are seeking wisdom from the Lord with all of our hearts. Our visits with the Chiropractor are going well and Andrew seems to be showing some signs of improvement. Not specifically an improvement of visual acuity which is what the ophthalmologist is looking for, but some improvements in other areas.
We were talking to our Chiropractor about where we were at with Andrew's vision and Andrew's patching regiment. Dr. Ky again suggested that we consider vision therapy. We talked more in depth about our experience with the optometrist and vision therapy. We thought, well that was that, and didn't think too much about it. But at our next visit Dr. Ky told us that he had talked to his brother in law who is one of the partners at the Child and Family eye clinic that we had taken Andrew to for an evaluation. We were shocked to find out that he had a brother in law there that was one of the partners. We were even more surprised that Dr. Ky of his own initiative spoke to Dr. Moffatt (the brother in law) on our behalf. Dr. Moffatt was interested and told Dr. Ky that he would personally look into Andrew's case. When Dr. Ky told us about this we were so blessed by his actions and believed that the Lord may be re-opening this door of vision therapy. Even more strange is that we later found out that Dr. McMain's whom we previously saw was no longer with the practice and that her emphasis was on the learning therapy...which was what turned us off as we were looking for vision help--not play therapy, because we wanted to do that at home!
So, we decided to schedule an appointment with Dr. Moffatt specifically and will be seeing him tomorrow to re-evaluate Andrew. From Andrew's file he said that he would never have recommended that we stop patching unless we were doing vision therapy and that he felt he would likely still need surgery. He was also puzzled as to why it took us 2 months to complete the evaluation. So, now we are cautiously, prayerfully reconsidering the possibility of vision therapy. Please join us in prayer as we seek the Lord's wisdom . In the end it is His will that we want to be done. I can't help but think about so many providential events and people that the Lord has placed in our life over the past few months, when it seemed all hope was gone and that we were to just accept that we had accomplished the best for Andrew's vision. Seemingly, out of no where, a door has opened that the Lord may use to accomplish healing in Andrew's life to "restore to you the years the locusts have eaten" -Joel 2:25
We were talking to our Chiropractor about where we were at with Andrew's vision and Andrew's patching regiment. Dr. Ky again suggested that we consider vision therapy. We talked more in depth about our experience with the optometrist and vision therapy. We thought, well that was that, and didn't think too much about it. But at our next visit Dr. Ky told us that he had talked to his brother in law who is one of the partners at the Child and Family eye clinic that we had taken Andrew to for an evaluation. We were shocked to find out that he had a brother in law there that was one of the partners. We were even more surprised that Dr. Ky of his own initiative spoke to Dr. Moffatt (the brother in law) on our behalf. Dr. Moffatt was interested and told Dr. Ky that he would personally look into Andrew's case. When Dr. Ky told us about this we were so blessed by his actions and believed that the Lord may be re-opening this door of vision therapy. Even more strange is that we later found out that Dr. McMain's whom we previously saw was no longer with the practice and that her emphasis was on the learning therapy...which was what turned us off as we were looking for vision help--not play therapy, because we wanted to do that at home!
So, we decided to schedule an appointment with Dr. Moffatt specifically and will be seeing him tomorrow to re-evaluate Andrew. From Andrew's file he said that he would never have recommended that we stop patching unless we were doing vision therapy and that he felt he would likely still need surgery. He was also puzzled as to why it took us 2 months to complete the evaluation. So, now we are cautiously, prayerfully reconsidering the possibility of vision therapy. Please join us in prayer as we seek the Lord's wisdom . In the end it is His will that we want to be done. I can't help but think about so many providential events and people that the Lord has placed in our life over the past few months, when it seemed all hope was gone and that we were to just accept that we had accomplished the best for Andrew's vision. Seemingly, out of no where, a door has opened that the Lord may use to accomplish healing in Andrew's life to "restore to you the years the locusts have eaten" -Joel 2:25
Sunday, March 22, 2009
Graduation Day
Well graduation day from trikes and Like-a Bike's that is! Andrew rode a bicycle for the first time...he made it look so easy. For him it was (and I think largely it was) because he learned to balance a bike on what is called a Like-a-Bike. Thank you again Paw-Paw and Grandmommie-it really worked. Andrew never used training wheels, he just learned to balance by using the like a bike which is a small bike with no pedals. He has been zipping around on this since last summer...even with his patch on he could navigate it with great ease. He had been asking to try and ride a "real" bicycle so we pulled out the bike we had saved for him and amazingly he just took off on it without any help. Watching him make turns and zip by sure doesn't look like someone who just learned to ride a few minutes before. Here is the video we shot of him below.
Now Kathlena has graduated to the Like a bike. She looks just like Andrew did when he first began, so I am sure she will be zipping around too in no time. This bike was an investment that really paid off as balance is one of the hardest parts of riding the bike and this bike helps kids achieve confidence in riding quickly so they can focus on maneuvering the bike. Here is a little clip of Kathlena taking her maiden voyage on the Like a Bike.
Now Kathlena has graduated to the Like a bike. She looks just like Andrew did when he first began, so I am sure she will be zipping around too in no time. This bike was an investment that really paid off as balance is one of the hardest parts of riding the bike and this bike helps kids achieve confidence in riding quickly so they can focus on maneuvering the bike. Here is a little clip of Kathlena taking her maiden voyage on the Like a Bike.
Friday, March 20, 2009
First Adjustment
Our first adjustments with the Chiropractor went pretty well. Andrew is liking them. He really likes the part where he gets to play with the toys in the waiting room, but he also did very well for Dr. Ky. Andrew actually received two adjustments today. He went early with Daddy for x-rays and was also adjusted. No surprises from the x-rays so that was good.
All of us went back a few hours later for our adjustments. Kathlena was very curious and watched closely as Dr. Ky adjusted E and J first then her. She liked it...especially the Cheeto crunch. Kathlena also showed some severe C1 and C2 misalignment's...not surprising as a result of her head tilt. We are hoping this will help her as well for her nystagmus and to strengthen her neck. She was really excited about her first time to go to the "fire cracker" this is what she calls the Chiropractor.
After their first adjustments I was talking to Dr. Ky and the kids went back over to the play area. I catch Andrew out of the corner of my eye pushing on something on the floor...almost as if administering CPR. I casually walk closer to see Kathlena on the floor with her arms crossed and Andrew pushing on her chest giving her an "adjustment". While I suppose this is the Chiropractic equivalent to playing doctor. I quickly suggested to both of them that we leave the adjusting to Dr. Ky.
I must say from my own adjustment that I have felt really good. Oddly, my nausea is gone. Hmm...I originally thought it to be unrelated except that it happened after my first adjustment too. It lasted for about 2 days then the nausea was back. Thankfully, I was in the next day and now it is gone again. I go back Mon. so we'll see if it holds.
I couldn't let the day go unnoticed. It has been 10 months today since our precious Andrew and Kathlena officially became Shiflets. It seems a lifetime ago since then and yet hard to believe not even a year yet.
All of us went back a few hours later for our adjustments. Kathlena was very curious and watched closely as Dr. Ky adjusted E and J first then her. She liked it...especially the Cheeto crunch. Kathlena also showed some severe C1 and C2 misalignment's...not surprising as a result of her head tilt. We are hoping this will help her as well for her nystagmus and to strengthen her neck. She was really excited about her first time to go to the "fire cracker" this is what she calls the Chiropractor.
After their first adjustments I was talking to Dr. Ky and the kids went back over to the play area. I catch Andrew out of the corner of my eye pushing on something on the floor...almost as if administering CPR. I casually walk closer to see Kathlena on the floor with her arms crossed and Andrew pushing on her chest giving her an "adjustment". While I suppose this is the Chiropractic equivalent to playing doctor. I quickly suggested to both of them that we leave the adjusting to Dr. Ky.
I must say from my own adjustment that I have felt really good. Oddly, my nausea is gone. Hmm...I originally thought it to be unrelated except that it happened after my first adjustment too. It lasted for about 2 days then the nausea was back. Thankfully, I was in the next day and now it is gone again. I go back Mon. so we'll see if it holds.
I couldn't let the day go unnoticed. It has been 10 months today since our precious Andrew and Kathlena officially became Shiflets. It seems a lifetime ago since then and yet hard to believe not even a year yet.
Thursday, March 19, 2009
Providential Postponement
We were two weeks from surgery, but have now decided to wait another 2 months. Over the past week and half we have been working with a Chiropractic Neurologist. This began as a search to help alleviate some back and neck pain that David has had chronically for years now and that I have started having 4 weeks ago; I think pregnancy related. Anyway, in the course of evaluating and working with Dr. Ky we decided to go ahead and have the kids evaluated also. As it turns out Andrew was off the chart in an area in the neck that is considered critical to a healthy central nervous system. This particular area is known for affecting the eyes as well.
After much prayer we decided to postpone Andrew's surgery a few months to give Dr. Ky a chance to work on Andrew and just see if he improves. If nothing else we believe it will help Andrew to be in better shape for the surgery.
I am not quite sure why this surgery thing has been such a difficult process for us. Everyone we have talked to who has had the surgery says it is a "piece of cake" as far as surgery goes. It seems just as we have dealt with it and moved forward with plans for surgery something providentially steps in that causes us to postpone. Maybe we have just needed more time; I do not know, but we prayerfully weigh what is best for Andrew and desire for him the very best outcome for his vision. I never knew how hard it is when there are so many varying opinions of treatment to single out what is the best one for the whole kid. I feel like I am constantly coming back to focus on what is best for Andrew as a whole child not just a pair of eyes. That may seem strange, but over the course of 10 months David and I have desperately tried to keep that perspective because Andrew has been changing so rapidly in so many areas one month it may seem like there is a problem but it resolves itself the next or because of the severity of trying to "fix" one thing it throws other areas out of whack. One thing is for sure it has kept us on our face before the Lord in Andrew's behalf causing us to trust the Lord more with each new challenge.
I should also note that Dr. Mazow gave us the option of waiting until summer anyway to do Andrew's surgery it was only because we believed nothing else could be done that we pursued surgery so quickly. We have now moved surgery to May 27, 2009...Lord willing. For now we will continue to patch 6-8hrs daily to "hold" his vision and begin tomorrow with Andrew's first adjustments at the Chiropractor.
After much prayer we decided to postpone Andrew's surgery a few months to give Dr. Ky a chance to work on Andrew and just see if he improves. If nothing else we believe it will help Andrew to be in better shape for the surgery.
I am not quite sure why this surgery thing has been such a difficult process for us. Everyone we have talked to who has had the surgery says it is a "piece of cake" as far as surgery goes. It seems just as we have dealt with it and moved forward with plans for surgery something providentially steps in that causes us to postpone. Maybe we have just needed more time; I do not know, but we prayerfully weigh what is best for Andrew and desire for him the very best outcome for his vision. I never knew how hard it is when there are so many varying opinions of treatment to single out what is the best one for the whole kid. I feel like I am constantly coming back to focus on what is best for Andrew as a whole child not just a pair of eyes. That may seem strange, but over the course of 10 months David and I have desperately tried to keep that perspective because Andrew has been changing so rapidly in so many areas one month it may seem like there is a problem but it resolves itself the next or because of the severity of trying to "fix" one thing it throws other areas out of whack. One thing is for sure it has kept us on our face before the Lord in Andrew's behalf causing us to trust the Lord more with each new challenge.
I should also note that Dr. Mazow gave us the option of waiting until summer anyway to do Andrew's surgery it was only because we believed nothing else could be done that we pursued surgery so quickly. We have now moved surgery to May 27, 2009...Lord willing. For now we will continue to patch 6-8hrs daily to "hold" his vision and begin tomorrow with Andrew's first adjustments at the Chiropractor.
Monday, March 2, 2009
An Introspection--An Interview with Andrew & Kathlena
Here's a slide-show I made of Andrew and Kathlena, complete with subtitles and Deleted Scenes!
-ha, ha, so much for deleted scenes! And yes, the subtitles are in English! :D
(Make sure to turn the music off on the sidebar)
Enjoy!!!!
-ha, ha, so much for deleted scenes! And yes, the subtitles are in English! :D
(Make sure to turn the music off on the sidebar)
Enjoy!!!!
Tuesday, February 17, 2009
Andrew loses his first front tooth
Andrew has been losing teeth like crazy, but this is the first one on top! Oh!!! how much it changes the little boy look to a big boy when those front teeth start to come in. I love that toothless smile though. The first thing he tried to do was whistle and he discovered that he could feel air blow through with his teeth closed and that whistling is a bit more difficult. He thought it was so funny.
Andrew was suppose to be going to sleep, but apparently he was busy wiggling his tooth to which he met success in pulling it out. He then runs out to show us his prize. It was too cute to see him so excited in having pulled it all by himself and such a big tooth.
I have to admit we knew this tooth was not going to last to long as he must have fallen on his mouth or something when he was younger. The dentist told us that the root was dead and that the tooth could fall out at any time. We are not sure when or how this happened as Andrew doesn't have a real concrete memory of it. Dentist thinks his permanent tooth is in good shape though and wasn't concerned he would have a problem there. PTL!
I miss that little boy smile already...it went by way to fast (1yr). I love the toothless time too though and it will go even faster.
Tuesday, February 10, 2009
Status Quo
Andrew had his monthly eye appointment with Dr. Mazow. While the very optimistic(we love this about him) Dr. Mazow believes Andrew is still improving he is still testing at the same acuity as a month ago, 20/60. We are continuing with the patching for another month to see if he will improve or if we have reached a plateau. Likely we will begin talking about surgery options at our next visit. We ask for your continued prayers as we trust the Lord to lead us through this decision making process to help give Andrew the best possible vision. He is such a trooper! While he does not like to wear his patch...he does and he never complains. It is as if he knows how important this is for him to wear...he has an amazing attitude about it that we believe could only come from the Lord. So we proceed for the 3rd consecutive month of patching all waking hours everyday.
Kathlena did not have her appointment as we had scheduled. A series of scheduling issues on our end and Dr. Mazow's had us postpone Kathlena's appointment until next month...perhaps a blessing in disguise. Although, Kathlena was trying to help Andrew see some of the pictures by calling them out while he was being tested...we quickly assured her that her time would soon come. Big brother appreciated the gesture though :)
Now our usual after our appointment routine is to head over to the Museum district since we are already downtown and have a picnic lunch before heading to the Zoo. We are making good use of our Zoo Pass. We were disappointed though since it was cloudy and threatening to rain the 11 day old baby giraffe was not visible for us to see nor the baby Safica Lemur. Fortunately, though we were able to watch via YouTube, but it would have been great to see them in person. Well maybe we will get to see them next time. We also spent quite a bit of time seeing the Primates. We started a new BFIAR book called Caps For Sale by Esphyr Slobodkina. It is an adorable little book about a peddler who sells caps and gets them snatched up by some curious little monkeys. We had fun monkeying around and watching the Mandrills, Lemurs, and Orangutans.
Here are a few pictures Emily captured for us at the Zoo.
Mom reading our new BFIAR book, Caps for Sale
Resting under a big tree like the peddler in
It was a good day...almost all fell asleep on the long ride home in traffic, but it was so worth it! We will have more on our visit next month until then we will keep checking on those Zoo updates and plan our Butterfly Exhibit trip. Spring is such a wonderful time of year!
Kathlena did not have her appointment as we had scheduled. A series of scheduling issues on our end and Dr. Mazow's had us postpone Kathlena's appointment until next month...perhaps a blessing in disguise. Although, Kathlena was trying to help Andrew see some of the pictures by calling them out while he was being tested...we quickly assured her that her time would soon come. Big brother appreciated the gesture though :)
Now our usual after our appointment routine is to head over to the Museum district since we are already downtown and have a picnic lunch before heading to the Zoo. We are making good use of our Zoo Pass. We were disappointed though since it was cloudy and threatening to rain the 11 day old baby giraffe was not visible for us to see nor the baby Safica Lemur. Fortunately, though we were able to watch via YouTube, but it would have been great to see them in person. Well maybe we will get to see them next time. We also spent quite a bit of time seeing the Primates. We started a new BFIAR book called Caps For Sale by Esphyr Slobodkina. It is an adorable little book about a peddler who sells caps and gets them snatched up by some curious little monkeys. We had fun monkeying around and watching the Mandrills, Lemurs, and Orangutans.
Here are a few pictures Emily captured for us at the Zoo.
Mom reading our new BFIAR book, Caps for Sale
Resting under a big tree like the peddler in
Caps For Sale!
Andrew loved watching this funny Mandrill, he had quite the
personality.
With the threat of rain looming over us we decided to check out a tip a friend gave me that The Museum of Natural Science has free admission to it's permanent main exhibits on Tuesdays from 2pm-8pm. It was fun since Andrew and Kathlena have not been before and it has been ages since Emily and J.Michael have been so it was like a first for us all. We were able to see how enormous dinosaurs would be standing next to us. We spent most of our time though touring the Energy exhibit. It was really informative and we even rode in a Geovator, which is a simulator that lets you experience what it would be like to go hundreds of feet below the surface on a drilling expedition to find oil. We also toured the Gem and Mineral exhibit...this was a favorite for Emily and I. It was so neat to see all of these huge pieces of rock that encased some of the world's most beautiful gems. We also went into the vault to see the collection of precious jewels. There were two pieces from St. Petersburg, Russia that were once worn by royalty.
Andrew loved watching this funny Mandrill, he had quite the
personality.
With the threat of rain looming over us we decided to check out a tip a friend gave me that The Museum of Natural Science has free admission to it's permanent main exhibits on Tuesdays from 2pm-8pm. It was fun since Andrew and Kathlena have not been before and it has been ages since Emily and J.Michael have been so it was like a first for us all. We were able to see how enormous dinosaurs would be standing next to us. We spent most of our time though touring the Energy exhibit. It was really informative and we even rode in a Geovator, which is a simulator that lets you experience what it would be like to go hundreds of feet below the surface on a drilling expedition to find oil. We also toured the Gem and Mineral exhibit...this was a favorite for Emily and I. It was so neat to see all of these huge pieces of rock that encased some of the world's most beautiful gems. We also went into the vault to see the collection of precious jewels. There were two pieces from St. Petersburg, Russia that were once worn by royalty.
It was a good day...almost all fell asleep on the long ride home in traffic, but it was so worth it! We will have more on our visit next month until then we will keep checking on those Zoo updates and plan our Butterfly Exhibit trip. Spring is such a wonderful time of year!
Monday, February 9, 2009
My favorite Andrew and Kathlena words
When we first started this blog we would periodically post J.Michaelisms. While J.Michael still zings us with his wit, his two younger siblings take the stage with some of their cute linguistic concoctions. Here are a few of our favorites:
Andrew
"Mom, is this Breafkist?" (breakfast)
"My name is Andrew David Shiff-ah-let" (Shiflet, I must admit though I had trouble with this too at first when I became a Shiflet)
Kathlena
She was out whacking the bushes in the yard with a large stick yelling "I kill the dime-o-saurs!"
"Daddy wearing your meeting shirt" translation "Daddy are you going to work today"
In the morning Kathlena will greet me with "I sleep good my beg (bed)" the greeting when she gets up from nap is " I happy"
Andrew
"Mom, is this Breafkist?" (breakfast)
"My name is Andrew David Shiff-ah-let" (Shiflet, I must admit though I had trouble with this too at first when I became a Shiflet)
Kathlena
She was out whacking the bushes in the yard with a large stick yelling "I kill the dime-o-saurs!"
"Daddy wearing your meeting shirt" translation "Daddy are you going to work today"
In the morning Kathlena will greet me with "I sleep good my beg (bed)" the greeting when she gets up from nap is " I happy"
Thursday, January 8, 2009
Ophthalmology Update...progress!!!
We went for our follow-up appointment today with Dr. Mazow, Andrew's pediatric ophthalmologist (maybe I will finally learn how to spell this word!) who specializes in strabismus and amblyopia. We were so thrilled to find out that Andrew had improved 3 lines, from 20/100 to 20/60. He is almost back to where we thought he was at last summer, although now we have to wonder if he really was 20/50 since two other Dr.s showed him at best 20/70. At any rate it was a great relief to have him going in the right direction. So, we continue to patch all waking hours for another month and pray we can get him to 20/30. This is Dr. Mazow's optimum for him before surgery. The truth is this would truly be a miracle given the likely length of time he has gone untreated as we believe him to have had this since birth. We trust our sovereign Lord and pray His will be done as He created Andrew's eyes and knew all of this would come to pass.
Dr. Mazow will do the surgery even if Andrew does not improve from where he is right now, but we are unsure how long he will wait. I believe as long as Andrew is showing improvement that we will continue to patch month to month. Once progress plateaus I am sure we will begin to talk about surgery options.
Dr. Mazow will do the surgery even if Andrew does not improve from where he is right now, but we are unsure how long he will wait. I believe as long as Andrew is showing improvement that we will continue to patch month to month. Once progress plateaus I am sure we will begin to talk about surgery options.
Patching all waking hours is difficult. We are seeing some changes in Andrew. As you can imagine he tires more easily, concentration and focusing on tasks has become much more challenging for him. In the evening I can more visibly see his nystagmus in the left eye as he is so tired. It is a sacrifice as his learning has slowed also although he continues to amaze us with his impeccable auditory learning and memory. The Lord has given him such a sweet spirit of perseverance and joyful attitude with all of this. Of course that smile says it all. We know the sacrifice is short term for long term benefits. We trust the Lord to guide us to make the best decisions for all of Andrew not just his eyes.
Dr. Mazow was so excited and so good with Andrew. It was a good day as we all went to this appointment together so, we all got to share the joy of this news first hand. In talking with the Orthoptist she noticed Kathlena's head tilt and we talked to her about Kathlena's nystagmus. We will be taking Kathlena in for evaluation at Andrew's next visit too. We feel so blessed by Dr. Mazow and his staff. All of them have been so good to us and the kids. We praise the Lord for leading us to this Dr. at just the right time.
I continue to research on both nystagmus and strabismus and surgical options. A book that has been very helpful to me is Navigating Nystagmus with Your Doctor. The man who wrote it has lived with nystagmus his whole life and fought to get the treatment he needed. He has done tons of research and even has yahoo groups of people who share this diagnosis. There have been some new surgical procedures in the last decade that may be what Andrew and/or Kathlena will need. I am continually in awe of how the Lord is providing for them in ways I could never have imagined.
Both Andrew and Kathlena continue to grow in stature and knowledge. They are truly incredible kids. I am so privileged to be their mom.
After our appointment we headed over to the Houston Zoo. That Zoo pass is going to get lots of use as we are going monthly for Dr. appointments. Here are some pictures from our day.
My beautiful girls!
Zebras were Andrew's favorite.
This little lizard was too funny. It was playing with Kathlena.
It would jump towards the glass at her and she would giggle.
I wished I had videoed it. It was too cute! The reptiles are not
usually so lively so we were surprised.
Andrew and Kathlena's first time on a carousel. They are
hooked now and can't wait to go back next month to ride
again.
Daddy is coming to pick us up and none too soon
as the littles are ready for a nap. It has been a long,
exciting day. Mommy is ready for a nap too!
Tuesday, December 9, 2008
Andrew's Eyes Update
Today, we went to see another ophthalmologist, Dr. Mazow of Houston Eye Center. In mid October under the advice of the optometrist we were seeing we stopped patching Andrew for his amblyopia. Once we concluded all of the testing with the optometrist and had our parent consult with the her we felt we needed to go back to an ophthalmologist as surgery is imminent (the one common thread through both dr.'s) and we were uneasy with the direction the optometrist was going. It would seem too much emphasis was being placed on his previous circumstances as empirical evidence was likely not reliable as a result of his English skills at the time of testing. So, we began patching again while we waited to get in to see Dr. Mazow as we were quite certain we would be going back to this. The more we read it seemed that in order to correct the amblyopia patching was the only way. I think this was our number one problem with the optometrist (even though we all wanted it to be true that there was another way other than patching) in that she said patching would not help him. It could be that she was willing to accept his acuity where it was and seek to improve other areas such as peripheral vision, but we were not ready to give up on him improving his acuity just yet.
Our visit with Dr. Mazow was as predicted and he concurred with our first ophthalmologist in that patching is what is needed and extensive patching in Andrew's case. So, we are back to patching all waking hours now for a month then we will go back to Dr. Mazow. He wants to keep a close check on him for signs of improvement. In Dr. Mazow's office he also had an orthoptist evaluate Andrew. She determined that he also has nystagmus in both eyes...it is very slight though. We both felt like we got a very thorough evaluation with Dr. Mazow and he is very experienced with strabismus and amblyopia. The trip to see him was not so fun as we were stuck in traffic for almost 2hrs to get to the appointment...you got to love Houston!
Please pray for Andrew...patching is hard. He is such a little trooper though. He is very compliant and knows that it is to help him see better, but it is still very hard. He tested at 20/100 at Dr. Mazow's office. When we began in July his vision was 20/50 then, 20/70 in October at the optometrist and now 20/100 so, it has doubled in 4 months. We only stopped patching for about 6 weeks. Even when we were patching it was getting worse...not sure why. We just continue to pray for wisdom and for healing for Andrew's eyes. Thank you for lifting him up to the Lord with us.
Our visit with Dr. Mazow was as predicted and he concurred with our first ophthalmologist in that patching is what is needed and extensive patching in Andrew's case. So, we are back to patching all waking hours now for a month then we will go back to Dr. Mazow. He wants to keep a close check on him for signs of improvement. In Dr. Mazow's office he also had an orthoptist evaluate Andrew. She determined that he also has nystagmus in both eyes...it is very slight though. We both felt like we got a very thorough evaluation with Dr. Mazow and he is very experienced with strabismus and amblyopia. The trip to see him was not so fun as we were stuck in traffic for almost 2hrs to get to the appointment...you got to love Houston!
Please pray for Andrew...patching is hard. He is such a little trooper though. He is very compliant and knows that it is to help him see better, but it is still very hard. He tested at 20/100 at Dr. Mazow's office. When we began in July his vision was 20/50 then, 20/70 in October at the optometrist and now 20/100 so, it has doubled in 4 months. We only stopped patching for about 6 weeks. Even when we were patching it was getting worse...not sure why. We just continue to pray for wisdom and for healing for Andrew's eyes. Thank you for lifting him up to the Lord with us.
Saturday, September 20, 2008
Andrew's 6th Birthday
The birthday boy! Look at how much he has grown!
September 20, 2008 4 months later.
May 29, 2008
Here we are trying to blow out candles
Still trying and finally all 6 are out. Good job.
Having fun with the blowouts.
Our faithful photographer! Thank you Emily for video too.
Pawpaw helping get toys from their packages.
Kathlena watching so patiently.
Andrew woke up today 5 no more but 6! We have talked all week about birthdays and how fun it will be to be 6yrs old. We had a real time trying to find his birthday cake though as most bakeries are still not up and running yet from the hurricane power outages. But even this became a first birthday memory. When we finally found a chocolate-chocolate cake at Kroger Andrew excitedly told all around us that it was going to be his 6th birthday tomorrow.
We had planned to have a small party and were so thrilled that both sets of grandparents could make the trip. He had a very special day with "Cars" decorations. It was so neat to see him open presents likely for the first time on his birthday. He wasn't even sure what to do but quickly caught on.
Kathlena wanted to blow out his candles so she had a turn after he blew them out too. It turned out to be a little warm but we managed to have a nice party outside and then quickly headed into the house for A/C. Here are some pictures from Andrew's special day. We love you, our sweet son!
Tuesday, July 22, 2008
Andrew's Workout
Andrew is working on building his leg muscles in this video with a little help from his big brother. Also, note he is wearing his eye patch. He is quite the trooper! He has been wearing it for 8hrs a day and we are already seeing improvements in his eye straightening. Wow! I am impressed. We will keep at it and pray for perfect 20/20 vision to be restored in his left eye.
*note when listening to video you can pause the background music I added. For those who are unfamiliar with this feature scroll down to the end of posts for the playlist box or click on this post and the playlist box will come up at the bottom.
*note when listening to video you can pause the background music I added. For those who are unfamiliar with this feature scroll down to the end of posts for the playlist box or click on this post and the playlist box will come up at the bottom.
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